Registered number: 7957558
Charity number: 1148789
UKPIPS
(A company limited by guarantee)
UNAUDITED
TRUSTEES' REPORT AND FINANCIAL STATEMENTS
FOR THE YEAR ENDED 29 FEBRUARY 2024
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UKPIPS
(A company limited by guarantee)
CONTENTS
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Reference and administrative details of the company, its Trustees and advisers
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Independent examiner's report
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Statement of financial activities
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Notes to the financial statements
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UKPIPS
(A company limited by guarantee)
REFERENCE AND ADMINISTRATIVE DETAILS OF THE COMPANY, ITS TRUSTEES AND ADVISERS
FOR THE YEAR ENDED 29 FEBRUARY 2024
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Margaret Anne Fuller (resigned 19 August 2023)
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Paul Michael Harris, Trustee (appointed 30 March 2022, resigned 18 May 2023)
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Susan Jane Dimmock, Chair (appointed 10 March 2023)
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Gary Narborough (appointed 1 April 2023)
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David Cohen (appointed 1 April 2023)
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Judith Gower (appointed 24 February 2024)
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Andrew Morris (appointed 24 February 2024)
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Company registered number
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Charity registered number
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Marine House
151 Western Road
Haywards Heath,
RH16 3LH
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GMBC LLP
Chartered Tax Advisers and Accountants
Marine House
151 Western Road
Haywards Heath
West Sussex
RH16 3LH
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Scottish charity registered number
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UKPIPS
(A company limited by guarantee)
TRUSTEES' REPORT
FOR THE YEAR ENDED 29 FEBRUARY 2024
The Trustees present their annual report together with the financial statements of UKPIPS for the 1 March 2023 to 29 February 2024. The Annual report serves the purposes of both a Trustees' report and a directors' report under company law. The Trustees confirm that the Annual report and financial statements of the charitable company comply with the current statutory requirements, the requirements of the charitable company's governing document and the provisions of the Statement of Recommended Practice (SORP) applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) (effective 1 January 2019).
Since the company qualifies as small under section 382 of the Companies Act 2006, the Strategic report required of medium and large companies under the Companies Act 2006 (Strategic Report and Directors' Report) Regulations 2013 has been omitted.
Objectives and activities
a. Policies and objectives
The charity’s objectives are:
• To provide information and support for patients (and their carers, partners and family) with a Primary
Antibody Deficiency (PAD) and other Primary Immune Deficiencies (PID), residing permanently or
temporarily in the United Kingdom
• To establish a volunteer medical panel comprising appropriate experts
• To advance the education of the general public and medical community in all areas relating to a Primary
Antibody Deficiency and other Primary Immune Deficiencies
• To promote the social and medical welfare of people with a Primary Antibody Deficiency and other
Primary Immune Deficiencies
• To encourage research into Primary Antibody Deficiency and other Primary Immune Deficiencies
• To champion recognition and representation
• To expand activities from time to time in any way that may be consistent with the foregoing to
bring benefit to the community of people in the UK with a Primary Antibody Deficiency and other Primary
Immune Deficiencies
In setting objectives and planning for activities, the Trustees have given due consideration to general guidance published by the Charity Commission relating to public benefit, including the guidance 'Public benefit: running a charity (PB2)'.
The aims of our charity are to provide anyone with a Primary Immune Deficiency or a Primary Antibody Deficiency, their carers and friends a place where they can find advice and support.
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UKPIPS
(A company limited by guarantee)
Objectives and activities (continued)
b. Activities undertaken to achieve objectives
Each year the trustees review UKPIPS’ aims and objectives and activities, and the achievements in the previous 12 months. It has again been a difficult year for our community, volunteers and medical panel, all of whom have been contending with the aftermath of Covid-19 and the difficulties of the health service within all countries of the United Kingdom. We have continued to provide information and support through our website, Facebook pages, Zoom meetings, a community event and LinkedIn.
Our priorities for the year were identified as:
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To ensure a more sustainable future by recruiting 2 or 3 trustees so that there is a continuing pool of knowledge and expertise for the charity and its functions.
∙To identify which trustees will lead each of the key activities by UKPIPs.
∙To look for more ways to be funded.
∙To increase the number of volunteers to allow the whole UK to be covered.
∙To develop a mechanism for benefits advice, advocacy, and information provision.
∙To introduce a newsletter for regular community updates
Achievements and performance
a. Review of activities
• Ten people showed an interest in volunteer roles with the charity, but only one of these materialised into a volunteer role (Stephen John) as time, health and suitability issues prevented further appointments.
• Trustee roles and responsibilities were maintained with Margaret Fuller retaining her Chair role through to the AGM and Sue Dimmock continuing with her NHS responsibilities.
• Unfortunately, in the early part of 2023 our long-serving and valued IT volunteer had to take a break from his responsibilities for medical treatment. Fortunately, David Cohen’s IT background gave us a useful opportunity for advice on any related issues. We are very grateful to Nigel Goode for all his system maintenance work as he underwent treatment. Gary Narborough assumed responsibility for advocacy and benefits and will undergo training, once a suitable online course is sourced.
• UKPIPS continues to provide information and support through our website; new newsletter (launched in July 2023); Facebook; LinkedIn; YouTube; weekly Zoom meetings and by mail for those who do not have access to IT. We are grateful for the support of our volunteers who help to update our social media platforms (Carol Hassard and Emma Coldray) and to Michael Howell for his support with the Friday Zoom meetings.
• Eighteen enquiries have been received through the website contact form during the year and all have been responded to by one or more of the trustees. Some have taken a considerable amount of time, such as a query from someone who was moving to the UK with his wife who had an immune deficiency.
• We have supported campaigns with NHSBT, to increase plasma donors, and Forgotten Lives, on prophylactic Covid treatments for immunocompromised individuals. We have been directly involved in one student project this year, researching the UK’s plasma donation policy.
• In terms of funding, the Pinball Surgery in July raised over £1700 and a coffee morning in August raised £120. Give As You Live continues to support with donations from online purchases. This year UKPIPS was very fortunate to receive a bequest of £5,000 from the will of Chris Shaw, at the end of 2023. UKPIPS is grateful to our Treasurer, Dave McNally for all his work on the charity’s finances and for ensuring we meet the reporting needs of the Charities Commission and Companies House. The launch of the Charities Commission’s new website in October created significant access issues for us, and many other charities. Due to this, and difficulties contacting the Commission, access was not fully resolved until February 2024. As a result, our accounts were submitted 13 days late.
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UKPIPS
(A company limited by guarantee)
Achievements and performance (continued)
• During the year, the UKPIPS’ network access storage (NAS) was successfully replaced and relocated together with a UPS installation as an additional security measure. David Cohen’s company (Mason Advisory Ltd.) very kindly donated a laptop to UKPIPS to replace a failing one.
• Following the successful Community Day in February 2023, a video of the event was uploaded onto YouTube, our website and our other principal social media platforms (Facebook and LinkedIn).
• Having achieved PIFTick accreditation in 2022, our annual re-assessment was carried out in 2023 and accreditation was successfully retained at the end of May. UKPIPS is very grateful to Carolyn Middleton for all her work on PIFTick and her ongoing support to the trustees, in her administration role.
• The charity continues to be represented at a senior NHS level with Sue Dimmock sitting as a Patient and Public Voice (PPV) on the Medicines Optimisation Clinical Reference Group (MOCRG) and being appointed to the Immunology and Allergy Clinical Reference Group (I&ACRG) in March 2023. The I&ACRG has been focussing its efforts during the year on been updating the 2013 Immunology and Allergy Service Specification. Sue was also more recently asked to sit on the Medicines Optimisation Delivery Group which translates the NHS England national medicines optimisation priorities into a delivery programme, for adoption across the NHS. Sue attended an All-Party Parliamentary Group looking at the effects of Mental Health during Covid and continues to work with a coalition of charities to ensure the impacts of Covid on the immunocompromised are not ignored.
Financial review
a. Going concern
After making appropriate enquiries, the Trustees have a reasonable expectation that the company has adequate resources to continue in operational existence for the foreseeable future. For this reason, they continue to adopt the going concern basis in preparing the financial statements. Further details regarding the adoption of the going concern basis can be found in the accounting policies.
b. Principal funding
Our funding comes from donations from members of the UKPIPS community and support from pharmaceutical companies.
c. Financial Review
During the year our community and volunteers have continued to be vulnerable to infection and so the charity has undertaken few physical activities. Therefore, funds have been used for improving electronic means of communication, our work with other organisations, and staffing and professional fees.
Other funding comes through donations from the community and legacy donations. We are extremely grateful for this generosity.
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UKPIPS
(A company limited by guarantee)
Structure, governance and management
a. Constitution
UKPIPS is a charitable company limited by guarantee and was set up by a Memorandum of Association and incorporated on 21 February 2012. It is registered with the Charity Commission in England and Wales no 1148789 and with the Office of the Scottish Charity Regulator in Scotland no SC044636.
b. Methods of appointment or election of Trustees
The management of the company is the responsibility of the Trustees who are elected and co-opted under the terms of the Articles of Association.
c. Organisational structure and decision-making policies
The management of the charity is undertaken by the Trustees, acting as the management company, with support from the volunteer treasurer, administrative assistant and UKPIPS members. We are grateful to our accountants who help to ensure that we keep proper accounting records and that accounting policies are applied consistently. The administrative assistant, with support from the IT volunteer, ensures that other records are held appropriately and conform to legal requirements. All policies are agreed by the Trustees and held in the central IT system, with the supporting procedures and updates.
The financial year started with only one remaining trustee following the resignation of Paul Harris. Sue Dimmock stood in as a co-opted trustee to assist Margaret Fuller. A recruitment drive was launched and two further trustees were appointed in April 2023 (David Cohen and Gary Narborough). All new trustees were formally appointed to their roles at the AGM in August 2023.
The Trustees are pleased to advise that at the time of signing the Annual Report and Accounts, 5 Trustees have been co-opted to the Board.
After many years of service to UKPIPS, Margaret Fuller retired at the AGM in September. UKPIPS puts on record its thanks for all her work up to this point and for all the work she continues to undertake on policies, in her volunteer voting member role.
This retirement resulted in a second recruitment drive for volunteers and trustees and two further trustees were appointed at an EGM in late February 2024. UKPIPS welcomes Judith Gower and Andrew Morris to the charity as co-opted trustees, who will be formally appointed at the AGM later in 2024.
Attempts were made to recruit to the Medical Panel but, despite two promising leads, no new members were available to be appointed
Plans for future periods
•To recruit further volunteers so that there is a continuing pool of knowledge and expertise underpinning
the charity and its functions, allowing for succession planning.
•To develop a business plan for the charity that aligns to trustee skills and capabilities.
• To formalise policies that meet the needs of the charity and the Charities Commission.
• To review the Memorandum and Articles of Association and decide if there is a better operating model for the charity.
• To review the charity’s financial model and generate charity income from new sources to remain viable.
Members' liability
The Members of the company guarantee to contribute an amount not exceeding £1 to the assets of the company in the event of winding up.
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UKPIPS
(A company limited by guarantee)
Statement of Trustees' responsibilities
The Trustees (who are also the directors of the company for the purposes of company law) are responsible for preparing the Trustees' report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).
Company law requires the Trustees to prepare financial statements for each financial year. Under company law, the Trustees must not approve the financial statements unless they are satisfied that they give a true and fair view of the state of affairs of the company and of its incoming resources and application of resources, including its income and expenditure, for that period. In preparing these financial statements, the Trustees are required to:
∙select suitable accounting policies and then apply them consistently;
∙observe the methods and principles of the Charities SORP (FRS 102);
∙make judgments and accounting estimates that are reasonable and prudent;
∙state whether applicable UK Accounting Standards (FRS 102) have been followed, subject to any material departures disclosed and explained in the financial statements;
∙prepare the financial statements on the going concern basis unless it is inappropriate to presume that the company will continue in business.
The Trustees are responsible for keeping adequate accounting records that are sufficient to show and explain the company's transactions and disclose with reasonable accuracy at any time the financial position of the company and enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.
Approved by order of the members of the board of Trustees and signed on their behalf by:
Susan Jane Dimmock
(Chair of Trustees)
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UKPIPS
(A company limited by guarantee)
INDEPENDENT EXAMINER'S REPORT
FOR THE YEAR ENDED 29 FEBRUARY 2024
Independent examiner's report to the Trustees of UKPIPS ('the company')
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I report to the charity Trustees on my examination of the accounts of the company for the year ended 29 February 2024.
Responsibilities and basis of report
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As the Trustees of the company (and its directors for the purposes of company law) you are responsible for the preparation of the accounts in accordance with the requirements of the Companies Act 2006 ('the 2006 Act').
Having satisfied myself that the accounts of the company are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of the company's accounts carried out under section 145 of the Charities Act 2011 ('the 2011 Act'). In carrying out my examination I have followed the Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act.
Independent examiner's statement
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I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe:
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accounting records were not kept in respect of the company as required by section 386 of the 2006 Act; or
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the accounts do not accord with those records; or
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the accounts do not comply with the accounting requirements of section 396 of the 2006 Act other than any requirement that the accounts give a 'true and fair' view which is not a matter considered as part of an independent examination; or
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the accounts have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities [applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)].
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I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
This report is made solely to the company's Trustees, as a body, in accordance with Part 4 of the Charities (Accounts and Reports) Regulations 2008. My work has been undertaken so that I might state to the company's Trustees those matters I am required to state to them in an Independent examiner's report and for no other purpose. To the fullest extent permitted by law, I do not accept or assume responsibility to anyone other than the company and the company's Trustees as a body, for my work or for this report.
Signed: Dated: 18 November 2024
Graham Hole
GMBC LLP
Chartered Tax Advisers and Accountants
Marine House
151 Western Road
Haywards Heath
West Sussex
RH16 3LH
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UKPIPS
(A company limited by guarantee)
STATEMENT OF FINANCIAL ACTIVITIES (INCORPORATING INCOME AND EXPENDITURE ACCOUNT)
FOR THE YEAR ENDED 29 FEBRUARY 2024
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Total funds brought forward
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Total funds carried forward
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The Statement of financial activities includes all gains and losses recognised in the year.
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The notes on pages 11 to 22 form part of these financial statements.
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UKPIPS
(A company limited by guarantee)
REGISTERED NUMBER: 7957558
BALANCE SHEET
AS AT 29 FEBRUARY 2024
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Creditors: amounts falling due within one year
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Total assets less current liabilities
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UKPIPS
(A company limited by guarantee)
REGISTERED NUMBER: 7957558
BALANCE SHEET (CONTINUED)
AS AT 29 FEBRUARY 2024
The company was entitled to exemption from audit under section 477 of the Companies Act 2006.
The members have not required the company to obtain an audit for the year in question in accordance with section 476 of Companies Act 2006.
The Trustees acknowledge their responsibilities for complying with the requirements of the Act with respect to accounting records and preparation of financial statements.
The financial statements have been prepared in accordance with the provisions applicable to entities subject to the small companies regime.
The financial statements were approved and authorised for issue by the Trustees on 18 November 2024 and signed on their behalf by:
Susan Jane Dimmock
(Chair of Trustees)
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The notes on pages 11 to 22 form part of these financial statements.
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UKPIPS
(A company limited by guarantee)
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 29 FEBRUARY 2024
UKPIPS is a private charitable company, limited by guarantee, domiciled in England and Wales,
registration number 7957558. The registered charity number is 1148789. The charity is also registered in Scotland and the charity number is SC044636. The registered office address is Marine House, 151 Western Road, Haywards Heath, West Sussex RH16 3LH.
2.Accounting policies
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Basis of preparation of financial statements
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The financial statements have been prepared in accordance with the Charities SORP (FRS 102) - Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019), the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) and the Companies Act 2006.
UKPIPS meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy.
All income is recognised once the company has entitlement to the income, it is probable that the income will be received and the amount of income receivable can be measured reliably.
The recognition of income from legacies is dependent on establishing entitlement, the probability of receipt and the ability to estimate with sufficient accuracy the amount receivable. Evidence of entitlement to a legacy exists when the company has sufficient evidence that a gift has been left to them (through knowledge of the existence of a valid will and the death of the benefactor) and the executor is satisfied that the property in question will not be required to satisfy claims in the estate. Receipt of a legacy must be recognised when it is probable that it will be received and the fair value of the amount receivable, which will generally be the expected cash amount to be distributed to the company, can be reliably measured.
Grants are included in the Statement of financial activities on a receivable basis. The balance of income received for specific purposes but not expended during the period is shown in the relevant funds on the Balance sheet. Where income is received in advance of entitlement of receipt, its recognition is deferred and included in creditors as deferred income. Where entitlement occurs before income is received, the income is accrued.
Income tax recoverable in relation to investment income is recognised at the time the investment income is receivable.
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UKPIPS
(A company limited by guarantee)
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 29 FEBRUARY 2024
2.Accounting policies (continued)
Expenditure is recognised once there is a legal or constructive obligation to transfer economic benefit to a third party, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is classified by activity.
Expenditure is accounted for on an accruals basis and has been included under expense categories that aggregate all costs for allocation to activities.
Expenditure on charitable activities is incurred on directly undertaking the activities which further the company's objectives, as well as any associated support costs.
All expenditure is inclusive of irrecoverable VAT.
Interest on funds held on deposit is included when receivable and the amount can be measured reliably by the company; this is normally upon notification of the interest paid or payable by the institution with whom the funds are deposited.
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Tangible fixed assets and depreciation
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Tangible fixed assets costing £100 or more are capitalised and recognised when future economic benefits are probable and the cost or value of the asset can be measured reliably.
Tangible fixed assets are initially recognised at cost. After recognition, under the cost model, tangible fixed assets are measured at cost less accumulated depreciation and any accumulated impairment losses. All costs incurred to bring a tangible fixed asset into its intended working condition should be included in the measurement of cost.
Depreciation is charged so as to allocate the cost of tangible fixed assets less their residual value over their estimated useful lives, on a reducing balance basis.
Depreciation is provided on the following basis:
Cash at bank and in hand includes cash and short-term highly liquid investments with a short maturity of three months or less from the date of acquisition or opening of the deposit or similar account.
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UKPIPS
(A company limited by guarantee)
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 29 FEBRUARY 2024
2.Accounting policies (continued)
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Liabilities and provisions
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Liabilities are recognised when there is an obligation at the Balance sheet date as a result of a past event, it is probable that a transfer of economic benefit will be required in settlement, and the amount of the settlement can be estimated reliably.
Liabilities are recognised at the amount that the company anticipates it will pay to settle the debt or the amount it has received as advanced payments for the goods or services it must provide.
Provisions are measured at the best estimate of the amounts required to settle the obligation. Where the effect of the time value of money is material, the provision is based on the present value of those amounts, discounted at the pre-tax discount rate that reflects the risks specific to the liability. The unwinding of the discount is recognised in the Statement of financial activities as a finance cost.
The company only has financial assets and financial liabilities of a kind that qualify as basic financial instruments. Basic financial instruments are initially recognised at transaction value and subsequently measured at their settlement value with the exception of bank loans which are subsequently measured at amortised cost using the effective interest method.
General funds are unrestricted funds which are available for use at the discretion of the Trustees in furtherance of the general objectives of the company and which have not been designated for other purposes.
Restricted funds are funds which are to be used in accordance with specific restrictions imposed by donors or which have been raised by the company for particular purposes. The costs of raising and administering such funds are charged against the specific fund. The aim and use of each restricted fund is set out in the notes to the financial statements.
Investment income, gains and losses are allocated to the appropriate fund.
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UKPIPS
(A company limited by guarantee)
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 29 FEBRUARY 2024
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Income from donations and legacies
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Subtotal detailed disclosure
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UKPIPS
(A company limited by guarantee)
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 29 FEBRUARY 2024
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Analysis of expenditure on charitable activities
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Promote and protect sufferers of Primary Immune Deficiencies
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Analysis of expenditure by activities
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Promote and protect sufferers of Primary Immune Deficiencies
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UKPIPS
(A company limited by guarantee)
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 29 FEBRUARY 2024
6.Analysis of expenditure by activities (continued)
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Analysis of support costs
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Promote and protect sufferers of Primary Immune Deficiencies
2024
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Loss on disposal of fixed asset
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PIF - Quality Mark Accreditation
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Independent examiner's remuneration
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Fees payable to the company's independent examiner for the independent examination of the company's annual accounts
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Fees payable to the company's independent examiner in respect of:
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All other services not included above
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UKPIPS
(A company limited by guarantee)
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 29 FEBRUARY 2024
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The average number of persons employed by the company during the year was as follows:
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No employee received remuneration amounting to more than £60,000 in either year.
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Trustees' remuneration and expenses
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During the year, no Trustees received any remuneration or other benefits (2023 - £NIL).
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During the year ended 29 February 2024, no Trustee expenses have been incurred (2023 - £NIL).
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UKPIPS
(A company limited by guarantee)
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 29 FEBRUARY 2024
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Creditors: Amounts falling due within one year
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Other taxation and social security
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UKPIPS
(A company limited by guarantee)
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 29 FEBRUARY 2024
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Financial assets measured at amortised cost
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Financial liabilities measured at amortised cost
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Financial assets measured at amortised cost comprise cash at bank and in hand.
Financial liabilities measured at amortised cost comprise other creditors and accruals.
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UKPIPS
(A company limited by guarantee)
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 29 FEBRUARY 2024
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Statement of funds - current year
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Balance at 1 March 2023
£
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Balance at 29 February 2024
£
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General Funds - all funds
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Restricted Funds - all funds
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Laptops and other hardware
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UKPIPS
(A company limited by guarantee)
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 29 FEBRUARY 2024
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Statement of funds (continued)
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Statement of funds - prior year
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Balance at
1 March 2022
£
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Balance at
28 February 2023
£
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Payroll and other overheads
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Laptops and other hardware
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UKPIPS
(A company limited by guarantee)
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 29 FEBRUARY 2024
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Analysis of net assets between funds
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Analysis of net assets between funds - current period
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Restricted funds
29 February
2024
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Unrestricted funds
29 February
2024
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Total
funds
29 February
2024
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Creditors due within one year
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Analysis of net assets between funds - prior period
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Restricted funds
28 February
2023
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Unrestricted funds
28 February
2023
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Total
funds
28 February
2023
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Creditors due within one year
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Scottish charity registration
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On 7 February 2014 UKPIPS registered as a charity under the Charities and Trustee Investment
(Scotland) Act 2005. It is entered on the Scottish Charity Register under number SC044636. The charity
trustees for UKPIPS are jointly responsible for running the charity and complying with Scottish charity
regulations.
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