The trustees, who are also directors of the charity for the purposes of the Companies Act 2006, present their report with the financial statements of the charity for the year ended 31 March 2024..
The financial statements have been prepared in accordance with the accounting policies set out in note 1 to the financial statements and comply with the charity's governing document, the Companies Act 2006 and "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)" (effective 1 January 2019).
The State of Heart Failure
Pumping Marvellous is leading efforts to improve care for heart failure in the NHS. The organisation is involved in various strategic and central committees to drive innovation. Heart failure is a complex syndrome with both clinical and social/psychological impacts on patients, their families, and the wider population. It has poorer outcomes and prognosis compared to most common forms of cancer. In the UK, an estimated 1,000,000 people suffer from heart failure, and 30-40% of those diagnosed could die within one year of diagnosis.
The population affected by heart failure is mostly elderly, but it can impact people of all ages. There is evidence to show that a prompt diagnosis and intervention by heart failure specialists, along with a strong multi-disciplinary team supporting the patient upon discharge, can lead to improved outcomes. However, the multi-disciplinary team is under-resourced and faces challenges in maintaining consistency, structure, and membership nationwide, which affects the level of support available to patients.
The Pumping Marvellous Foundation was established to demonstrate leadership in utilisiing patient insights. It collaborates with all stakeholders to ensure the highest quality of life for patients and their families.
Aims and Objectives
PMF has four primary goals that act as a cohesive multi-disciplinary approach to heart failure care:
To support patients, carers and their families on how to self-manage the psychological, socio-economic, and physical impacts on their lives that the condition imposes.
To improve timescales to diagnose heart failure at primary care gateways.
To increase the number of patients receiving specialist heart failure care and support.
To influence policies of all stakeholders to reflect patient needs.
PMF carries out the following activities to achieve these goals:
Working in partnership with the NHS at central and regional level, to create patient-driven initiatives.
Operating a comprehensive website which enables PMF to act as a catalyst to facilitate the progression of heart failure care.
Providing advocacy services to beneficiaries at a local, regional and national level through a network of regional volunteers who engage in campaigns, publications, distribute literature and build local relationships.
Lobbying MP's and government officers to gain their support in raising awareness of the increasing cost of heart failure to the health economy.
Utilising peer-to peer coaching and patiemt support to promote, self-care, self-education, and self- intervention to increase early diagnosis and treatment of heart failure.
Public Benefit
The mission of the Pumping Marvellous Foundation is to ensure that patients receive the best possible treatment, care, and support, ultimately improving their quality of life and that of their families. The foundation aims to ensure that patients receive the best diagnosis, clinical intervention, and support from a multidisciplinary team in both acute and community settings, leading to an improved quality of life. Additionally, the foundation seeks to collaborate with other organizations and individuals to facilitate the development of heart failure services, providing a clear pathway from diagnosis to secondary and community care settings, and eventually to palliative services.
Objectives
Please remember the following points:
Ensure that the patient voice is represented in all communication channels with stakeholders.
Establish and maintain a community of patients who provide support to each other.
Increase awareness of heart failure and its primary symptoms across all stakeholder channels.
Strengthen our digital presence and resources.
Focus on building a sustainable financial model for the charity.
Emphasize the importance of a multi-disciplinary team.
Foster partnerships with stakeholders in the health system.
Implement and enhance the governance framework of the foundation.
Continuously review and improve the organizational structure to meet demands.
Activities and Achievements
We are committed to customising resources to assist patients diagnosed with heart failure. This assistance also extends to the patient's caregivers and families. Our services include a patient telephone support line, email support, website chat support, Facebook messaging support, and Twitter direct message support.
We offer peer-to-peer support through our private Facebook community, which is exclusively for HF patients and those impacted by the condition. This community is continuously growing, with NHS nurses, cardiologists, and cardiac rehab teams frequently referring patients for non-medical support. We have strict moderation and rules governing activity, which are enforced by our Patient Educators.
Heart Failure Awareness
The main thrust of activities around building awareness has been via our BEAT Campaign and the use of digital space and social media.
Awareness of heart failure is a rolling conversation. Our three thrusts have been aimed at the following:
General Awareness of the condition and its symptoms.
Awareness of the patient voice that does not exist in the stakeholder channels.
Innovations and forward momentum in therapies and new ways of working focusing on diagnosis, efficient use of HF specialists, and getting patients to heart failure nurses.
Volunteer development
Please keep the following text in mind:
With our Patient Advisory Committee, it is crucial that we continue to concentrate on enhancing the skills of our valuable volunteers. We are dedicated to establishing a diverse and inclusive community of heart failure patients and have made substantial efforts to achieve widespread volunteer representation across the UK. Our focus is on increasing the number of patient educator volunteers, particularly those who can represent individuals with HFpEF.
Significant political activity
We have continued our membership of the Alliance for Heart Failure.
We have attended political events when necessary.
This will be an ongoing activity when there is more clarity and potential adhesion to political leadership.
We deliver feedback through various channels, giving insight into how people live with heart failure.
Significant operational activity
By the end of March 2024, we supplied over 350,000 pieces of information free of charge to HF teams across the UK. This is an increase of over 50% in 2022_23 and we continue to see the rise in demand moving into 2024_25
Launch of new Patient Guides for Iron Deficiency, HFpEF, Ejection Fraction and Potassium
Translation of the top Five patient guides into Polish, Welsh, Bengali, Urdu and Punjabi.
The BEAT HF campaign continues to play a significant role and is now the UK's most prominent public awareness campaign. It is a multi-channel campaign covering.
National Radio
Social Media
Mass-Transit digital advertising
Prominent arterial City route roadside advertising
BEATie, the Pumping Marvellous electric van, continued her tour of the UK to support the BeatHF campaign
Significant marketing activity
Continued increase in activity across our digital channel’s year-on-year
Radio advertising to support the BeatHF campaign.
National press advertising and content
Mass transit digital road sign advertising
National Railway Station digital road sign advertising
London Underground digital board, static and motion advertising
Major Conferences attended
Our CEO represented patients at NICE on the various medical technology appraisals, scientific committees and providing valuable patient insights. Delivered remotely.
We attended many other speaker events across the UK. All honorariums payable were paid direct to the charity.
Governance
The charity continues to review and refine its governance with its legal representatives.
Press and Media Activity (on and offline)
International Press
National Press
Local Press
Social media
Radio
Digital signage – National Rail / London Underground / Main Arterial City Roads
Communication/ IT infrastructure/ Web
We continue to invest in our communication and IT infrastructure. All systems continue at an "Enterprise" level, providing the organisation with robustness around security and data protection.
We continue to use Zoom and Teams to facilitate internal and external meetings.
Fundraising
Fundraising Overview: April 2023-2024
Donations & Fundraisers £61,937
We continue to promote our fundraising channels and have continually developed this area on our website, we continue to support our fundraisers and all their efforts.
As a dynamic charity, we have continued to rely on the generosity and kindness of our supporters to enable people living with heart failure across the UK to access the practical and emotional help and support they need when they need it most.
Corporate and Grant Funding £260.087
During this period, it has been possible to continue employing a part-time administrator to explore potential new avenues of funding (in companies and trusts).
In Summary
Donations received from trusts £17,134
Charitable Trust fundraising will continue throughout 2024/25; there has been a significant decrease in trust funding available.
Project Delivery
It is essential to highlight that all companies we engage with have signed our MOU.
Awareness Campaigns (BeatHF)
Novartis Pharma Uk London £9,533 Radio disease awareness
Projects
Medtronic Limited £51,704 Healthy Heart Program
Pharmacosmos £55,000 Cardiac Rehabilitation Platform
Astra Zeneca £19,900 Starlight Project
National Lottery £8,580 Patient Educator Conference
NHS England £10,000 Yorkshire 3 ICB project
Patient Guides
Pharmacosmos UK Ltd £17,370 Iron Deficiency Guide
Astra Zeneca UK Ltd £64,950 Discharge Pack
Midlands Partnership NHS
Foundation Trust £10,000 Patient Information
Medtronic Limited £8,700 Patient Information
Corporate Donations
Probe Drainage £1,500 Sponsorship Healthy Heart Program
CPC £1,500 Sponsorship 7 in 7
PRS Group £1,000
Paragon Bank £350
Financial Performance
2023-24 closed with a balance of £366,799 the total income for 2023-24 was £360,067, a decrease of approximately 48% from 2022-23, against the expenditure of £455,001,which represents a decrease of approximately 22% from 2022-23. These changes are reflective of the development and stability of the team over the year. The decrease in income is reflective of the economic environment and the increased difficulty in obtaining funding.
The Pumping Marvellous Foundation continues to receive income from a variety of funding streams and relies on the generosity of the public for its fundraising activities for example: - donations from individuals and organisations, sponsorship of individuals involved in sporting activities.
Consultancy Payments £8,153
Along with grant funding, partnerships, and projects, this enables the employment of a full-time officer (CEO), two nearly full-time managers to run the daily operations and deliver projects, and two part-time administrators to drive the charity forward, support our community, and produce the tool kits promoting the charity's awareness and aims.
Reserves Policy
The reserves policy allows the charity to plan and develop a programme for future activities with the certainty that it can proceed and deliver projects without dependence on further funding. The trustees are happy to hold reserves up to an equivalent of 12 months of general operating costs to provide the basis for building the charity and continuing its work should it suffer a downturn in income. Pumping Marvellous Foundation’s current budgeted monthly expenditure for the upcoming year is approximately £20,000.
Principal Funding sources
PMF has continued to forge strong partnerships with Life Sciences organisations as well as their respective trade organisations. As PMF grows, we will be looking to develop our other channels further for funding including corporate and grant funding, legacy and wills and strengthen our public support along with the NHS partnerships.
The trustees, who are also the directors for the purpose of company law, and who served during the year and up to the date of signature of the financial statements were:
Trustee Team
The Pumping Marvellous Foundation has a voluntary trustee board that meets on a bi-yearly basis and convenes for tele-conference calls as required.
The Trustees govern the charity through its Governance Documents and the Articles of Association.
Although the current board of trustees do not have any pecuniary interest and receive no payment from the charity other than out of pocket expenses we have entered into a contract where significant qualified medical advice was required for a project delivery. It was then decided that Angela Graves, the Chair and former employee of the charity, was formally contracted to provide medical advice and project management. This is not a continuous contract and was fulfilled once the project had been completed. The appropriate diligence was completed, and our legal team advised the charity trustees on how to complete this.
The Trustee Board is currently recruited by recommendation. This may change with the needs of the charity. The administrative trustees are nominated and voted in by the trustees vote every year.
Operational Team
The Pumping Marvellous Foundation has an executive team with administrative, clinical and fundraising support that manages the strategic direction and is responsible for the charity's activities.
Patient Advisory Group
This is a collection of expert patients who volunteer their time to help fellow patients. They are called Patient Educators and are intrinsically involved in the direction and activities of the charity regularly supporting the operations team in its activities.
Clinical Advisory Board
The role of the Clinical Board is to act as an independent advisory board with no responsibility or accountability as to the actions of the charity. The purpose of the Clinical Board is to guide the charity in making the right decisions around the health and wellbeing of heart failure patients across the United Kingdom- offering factual and real-world experience from the clinical and payer perspective. The Clinical Board will have access to all the charity's resources and will also act to create new opportunities for the charity. The Clinical Board's role is advisory and is not binding on the Charity. The Charity will indemnify the Clinical Board against legal claims based on its advice, provided the members of the Clinical Board have acted in good faith and have given advice in keeping with the conduct of their professional positions.
Membership
The charity does not have a membership and is all inclusive in line with the charity objects.
Investments
A trading subsidiary, Pumping Marvellous Ventures, was set up to enable opportunities that occur outside the charity's main focus yet benfit the charity's core operations.
CEO Summary Statement
The Pumping Marvellous Foundation is the go-to organisation for:
Real patient insights
Significant distributor of patient information to the NHS through heart failure teams.
A leading advocate of heart failure patients across the UK.
Valuable partner to all stakeholders especially the NHS, NICE and those advocating change.
The Pumping Marvellous Foundation was described as a "Consultancy to us all". A fair comment, however, we deliver at all levels. At the coal face with the patients and superbly equipped to deal with the national conversations at the highest of levels, a challenge that all associated with the charity are keen to continue, not least by the patients themselves.
To build upon the foundations that the charity has laid however, will require the resources to delivery on our core aims and objectives, and therefore assuring funding from multi stakeholders will be a priority going forward. We will need to be agile and athletic around spreading our bets around where we access funding. We need to level the playing field and focus on grants and corporate funding where this is significant value not only for PMF but also the funder. We have over 1,000,000 people in our beneficiary population and currently we are the only specific heart failure patient organisation in the UK.
The trustees' report was approved by the Board of Trustees.
I report to the trustees on my examination of the financial statements of Pumping Marvellous Foundation (the charity) for the year ended 31 March 2024.
As the trustees of the charity (and also its directors for the purposes of company law) you are responsible for the preparation of the financial statements in accordance with the requirements of the Companies Act 2006 (the 2006 Act).
Having satisfied myself that the financial statements of the charity are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of the charity’s financial statements carried out under section 145 of the Charities Act 2011 (the 2011 Act). In carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act.
Since the charity’s gross income exceeded £250,000 your examiner must be a member of a body listed in section 145 of the 2011 Act. I confirm that I am qualified to undertake the examination because I am a member of ICAEW, which is one of the listed bodies.
I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
accounting records were not kept in respect of the charity as required by section 386 of the 2006 Act; or
the financial statements do not accord with those records; or
the financial statements do not comply with the accounting requirements of section 396 of the 2006 Act other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination; or
the financial statements have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102).
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the financial statements to be reached.
The statement of financial activities includes all gains and losses recognised in the year. All income and expenditure derive from continuing activities.
Pumping Marvellous Foundation is a private company limited by guarantee incorporated in England and Wales. The registered office is Suite 111 Business First, Millenium City Park, Millenium City Road, Ribbleton, Preston, Lancashire, PR2 5BL.
The financial statements have been prepared in accordance with the charity's Governance Documents and Articles of Association, the Companies Act 2006 and "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)". The charity is a Public Benefit Entity as defined by FRS 102.
The charity has taken advantage of the provisions in the SORP for charities applying FRS 102 Update Bulletin 1 not to prepare a Statement of Cash Flows.
The financial statements are prepared in sterling, which is the functional currency of the charity. Monetary amounts in these financial statements are rounded to the nearest £.
The financial statements have been prepared under the historical cost convention. The principal accounting policies adopted are set out below.
At the time of approving the financial statements, the trustees have a reasonable expectation that the charity has adequate resources to continue in operational existence for the foreseeable future. Thus the trustees continue to adopt the going concern basis of accounting in preparing the financial statements.
Unrestricted funds are available for use at the discretion of the trustees in furtherance of their charitable objectives.
Restricted funds are subject to specific conditions by donors or grantors as to how they may be used. The purposes and uses of the restricted funds are set out in the notes to the financial statements.
Cash donations are recognised on receipt. Other donations are recognised once the charity has been notified of the donation, unless performance conditions require deferral of the amount. Income tax recoverable in relation to donations received under Gift Aid or deeds of covenant is recognised at the time of the donation.
Legacies are recognised on receipt or otherwise if the charity has been notified of an impending distribution, the amount is known, and receipt is expected. If the amount is not known, the legacy is treated as a contingent asset.
Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all costs related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources.
Tangible fixed assets are initially measured at cost and subsequently measured at cost or valuation, net of depreciation and any impairment losses.
Depreciation is recognised so as to write off the cost or valuation of assets less their residual values over their useful lives on the following bases:
The gain or loss arising on the disposal of an asset is determined as the difference between the sale proceeds and the carrying value of the asset, and is recognised in the statement of financial activities.
Fixed asset investments are initially measured at transaction price excluding transaction costs, and are subsequently measured at fair value at each reporting date. Changes in fair value are recognised in net income/(expenditure) for the year. Transaction costs are expensed as incurred.
A subsidiary is an entity controlled by the charity. Control is the power to govern the financial and operating policies of the entity so as to obtain benefits from its activities.
The charity is exempt from corporation tax on its charitable activities.
The charitable company operates a defined contribution pension scheme. Contributions payable to the charitable company's pension scheme are charged to the Statement of Financial Activities in the period to which they relate.
Charitable Expenditure
Charitable Expenditure
The average monthly number of employees during the year was:
The charity is exempt from taxation on its activities because all its income is applied for charitable purposes.
The charity operates a defined contribution pension scheme for all qualifying employees. The assets of the scheme are held separately from those of the charity in an independently administered fund.
The restricted funds of the charity comprise the unexpended balances of donations and grants held on trust subject to specific conditions by donors as to how they may be used.
The unrestricted funds of the charity comprise the unexpended balances of donations and grants which are not subject to specific conditions by donors and grantors as to how they may be used. These include designated funds which have been set aside out of unrestricted funds by the trustees for specific purposes.
There were no disclosable related party transactions during the year (2023 - none).