REGISTERED COMPANY NUMBER: 09075755 (England and Wales)

REGISTERED CHARITY NUMBER: 1162441

REPORT OF THE TRUSTEES AND

UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 JUNE 2025

FOR

INDEPENDENT FETAL ANTI-CONVULSANT TRUST

Page

Report of the Trustees

1

to

4

Statement of Financial Activities

5

Balance Sheet

6

to

7

Notes to the Financial Statements

8

to

13

The trustees who are also directors of the charity for the purposes of the Companies Act 2006, present their report with the financial statements of the charity for the year ended 30 June 2025. The trustees have adopted the provisions of Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019).

OBJECTIVES AND ACTIVITIES

Objectives and aims

The charity's main object is to relieve the needs of disabled persons whose disabilities were caused as a result of their mother taking an anti-convulsant drug during pregnancy to treat her condition in such ways as the trustees may from time to time decide.

ACHIEVEMENTS AND PERFORMANCE

Following last years General Election and its results we rather hoped that possibilities within Parliament and Government as a whole would be better, however, this created more work than first anticipated. With numerous new MPs to contact, our first port of call was to ask member to write to their MP suggesting a meeting with INFACT, then in an attempt to contact that MP, we found emails were failing to get through the Parliamentary system forcing INFACT to set a new office email address.

Our first MP meetings took place the first week back on the 3rd September to re-visit and discuss that situation at hand with the Hughes Report and the campaign going forward. With new and re-elected MPs, we were finally able to drum up support.

This year we had decided to visit the Labour conference for the first time, this allowed to talk to MPs, have brief discussions with the Minister for the DWP and put a question to Health Secretary Wes Streeting MP on the position of the Hughes Report.

With families based in Scotland and their concerns of not having a Patient Safety Commissioner (PSC) there at the moment, and in October we were able to make an appointment to meet with Scottish Labour Health Minister Jackie Baille with a visit to Holyrood. The meeting was very positive and we came home with others to contact on the topic of their PSC.

On 6th November our plans were to visit No 10 Downing St to deliver a letter to the Prime Minister, this was to ensure he and his Cabinet aware of the position of the families affected by Sodium Valproate and the struggles and lack of support they endured. While in Parliament a supporting MP put forward a Prime Ministers Question asking just that and making him aware of our visit, and we met up with MP Cat Smith and others.

Our following meetings were in December in the House of Lords to meet with Baroness Ritchie, Baroness Merron and Baroness Cumberlege, with the advantage of meeting with Patient Safety Commissioner Dr Henrietta Hughes. The same week we had a Teams meeting booked with Baroness Merron as she was now Health Minister and would be dealing with the Hughes Report and Costing for Compensation.

Following all this, on Friday 13th we had a meeting set with Dr Rebecca Bromley to discuss the Diagnostic Clinic and its progress which was coming along slowly and which had been held up be the addition of specialists required. However, after Christmas on the 22nd January we had our next meeting and it was full steam ahead for the Fetal Exposure to Medicines Clinic. This was only to be a pilot scheme in the North of England to see how many families it brought forward and would go on until December 2025. We now had to encourage families to book their place through their GP.

On the 3rd February we had further MP appointments in Westminster, this time joined by their parents to allow them to explain to their MP what life was like for a family affected by sodium Valproate. The meetings went very well, and we had a very special appointment with former Paymaster General for the Conservatives who offered his full support to put forward written and oral questions in the House and to be Chair of any MPs roundtable meetings we felt were necessary.

On the 7th February it was the 12-month anniversary of the Hughes Report which brought along media attention appearing on ITV Granada Reports, interviews on LBC Radio and with a piece in the Sunday Times.

The next was a Westminster Hall Debate on 27th March which we had been invited to by Host Sharon Hodgson MP where she was able to ask Health Minister about the hold up of the response to the Hughes Report with many families lives on hold. The Health Minister to respond was Ashley Dalton MP who gave the Governments heart felt apology for what families had and were going through, leaving many in the gallery in tears.

Before we knew it, April was upon us and we were approached by Producer of Little Gem, the makers of the Post office programme. It was our opportunity to tell our story although it may take some time and go through many hoops, but the hope was there, meeting with him and his writer many times over the next months.

There were a number of visits to Westminster from May through to June which included meetings in the House of Lords, further MPs new to the campaign and conferences in Parliament and at the General Pharmaceutical Council

All in all, this year had been very busy, yet we still wait for the response from the Dept of Health and Social Care to the Hughes Report.

FINANCIAL REVIEW

The statement of financial activities shows a defecit of £12,991 and carried forward surplus funds of £6,056.

Donations during the period were £1,106.

STRUCTURE, GOVERNANCE AND MANAGEMENT

Governing document

The charity is controlled by its governing document, memorandum and articles of association, and consists a limited company, limited by guarantee, as defined by the Companies Act 2006.

REFERENCE AND ADMINISTRATIVE DETAILS

Registered Company number

09075755 (England and Wales)

Registered Charity number

1162441

Registered office

Heather Brae

School Lane

Pilling

Preston

Lancashire

PR3 6AA

Trustees

Mrs J Williams Director

Mrs E Murphy Director

Mrs S Palmer Director

Bankers

Natwest Bank plc

Garstang Branch

Market Place

Garstang

PR3 1ZA

Approved by order of the board of trustees on 5 November 2025 and signed on its behalf by:

Mrs J Williams - Trustee

2025

2024

Unrestricted

Restricted

Total

Total

fund

fund

funds

funds

Notes

£

£

£

£

INCOME AND ENDOWMENTS FROM

Donations and legacies

2

1,106

-

1,106

22,747

EXPENDITURE ON

Charitable activities

General

13,138

959

14,097

9,879

NET INCOME/(EXPENDITURE)

(12,032

)

(959

)

(12,991

)

12,868

Transfers between funds

9

10,502

(10,502

)

-

-

Net movement in funds

(1,530

)

(11,461

)

(12,991

)

12,868

RECONCILIATION OF FUNDS

Total funds brought forward

2,530

16,517

19,047

6,179

TOTAL FUNDS CARRIED FORWARD

1,000

5,056

6,056

19,047

2025

2024

Unrestricted

Restricted

Total

Total

fund

fund

funds

funds

Notes

£

£

£

£

FIXED ASSETS

Tangible assets

6

528

559

1,087

1,595

CURRENT ASSETS

Debtors

7

832

-

832

-

Cash at bank and in hand

180

4,497

4,677

17,911

1,012

4,497

5,509

17,911

CREDITORS

Amounts falling due within one year

8

(540

)

-

(540

)

(459

)

NET CURRENT ASSETS

472

4,497

4,969

17,452

TOTAL ASSETS LESS CURRENT LIABILITIES

1,000

5,056

6,056

19,047

NET ASSETS

1,000

5,056

6,056

19,047

FUNDS

9

Unrestricted funds

1,000

2,530

Restricted funds

5,056

16,517

TOTAL FUNDS

6,056

19,047

The charitable company is entitled to exemption from audit under Section 477 of the Companies Act 2006 for the year ended 30 June 2025.

The members have not required the company to obtain an audit of its financial statements for the year ended 30 June 2025 in accordance with Section 476 of the Companies Act 2006.

The trustees acknowledge their responsibilities for

(a)	ensuring that the charitable company keeps accounting records that comply with Sections 386 and 387 of the Companies Act 2006 and

(b)

preparing financial statements which give a true and fair view of the state of affairs of the charitable company as at the end of each financial year and of its surplus or deficit for each financial year in accordance with the requirements of Sections 394 and 395 and which otherwise comply with the requirements of the Companies Act 2006 relating to financial statements, so far as applicable to the charitable company.

These financial statements have been prepared in accordance with the provisions applicable to charitable companies subject to the small companies regime.

The financial statements were approved by the Board of Trustees and authorised for issue on 5 November 2025 and were signed on its behalf by:

Mrs J Williams - Trustee

1.	ACCOUNTING POLICIES

BASIS OF PREPARING THE FINANCIAL STATEMENTS

The financial statements of the charitable company, which is a public benefit entity under FRS 102, have been prepared in accordance with the Charities SORP (FRS 102) 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019)', Financial Reporting Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland' and the Companies Act 2006. The financial statements have been prepared under the historical cost convention.

INCOME

All income is recognised in the Statement of Financial Activities once the charity has entitlement to the funds, it is probable that the income will be received and the amount can be measured reliably.

EXPENDITURE

Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charity to that expenditure, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is accounted for on an accruals basis and has been classified under headings that aggregate all cost related to the category. Where costs cannot be directly attributed to particular headings they have been allocated to activities on a basis consistent with the use of resources.

TANGIBLE FIXED ASSETS

Depreciation is provided at the following annual rates in order to write off each asset over its estimated useful life.

Fixtures and fittings

-

15% on reducing balance

TAXATION

The charity is exempt from corporation tax on its charitable activities.

FUND ACCOUNTING

Unrestricted funds can be used in accordance with the charitable objectives at the discretion of the trustees.

The total funds of the charity are unrestricted.

2.	DONATIONS AND LEGACIES

2025

2024

£

£

Donations

1,106

2,747

Grants

-

20,000

1,106

22,747

Grants received, included in the above, are as follows:

2025

2024

£

£

The Big Lottery Fund - Award for All

-

20,000

3.	NET INCOME/(EXPENDITURE)

Net income/(expenditure) is stated after charging/(crediting):

2025

2024

£

£

Depreciation - owned assets

508

176

4.	TRUSTEES' REMUNERATION AND BENEFITS

There were no trustees' remuneration or other benefits for the year ended 30 June 2025 nor for the year ended 30 June 2024.

TRUSTEES' EXPENSES

There were no trustees' expenses paid for the year ended 30 June 2025 nor for the year ended 30 June 2024.

5.	COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES

Unrestricted

Restricted

Total

fund

fund

funds

£

£

£

INCOME AND ENDOWMENTS FROM

Donations and legacies

2,747

20,000

22,747

EXPENDITURE ON

Charitable activities

General

1,396

8,483

9,879

NET INCOME

1,351

11,517

12,868

RECONCILIATION OF FUNDS

Total funds brought forward

1,179

5,000

6,179

TOTAL FUNDS CARRIED FORWARD

2,530

16,517

19,047

6.	TANGIBLE FIXED ASSETS

Fixtures

and

fittings

£

COST

At 1 July 2024 and 30 June 2025

3,388

DEPRECIATION

At 1 July 2024

1,793

Charge for year

508

At 30 June 2025

2,301

NET BOOK VALUE

At 30 June 2025

1,087

At 30 June 2024

1,595

7.	DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR

2025

2024

£

£

Prepayments and accrued income

832

-

8.	CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR

2025

2024

£

£

Accruals and deferred income

540

459

9.	MOVEMENT IN FUNDS

Net

Transfers

movement

between

At

At 1/7/24

in funds

funds

30/6/25

£

£

£

£

Unrestricted funds

General fund

2,530

(12,032

)

10,502

1,000

Restricted funds

The Big Lottery Fund - Awards for All

16,517

(959

)

(10,502

)

5,056

TOTAL FUNDS

19,047

(12,991

)

-

6,056

Net movement in funds, included in the above are as follows:

Incoming

Resources

Movement

resources

expended

in funds

£

£

£

Unrestricted funds

General fund

1,106

(13,138

)

(12,032

)

Restricted funds

The Big Lottery Fund - Awards for All

-

(959

)

(959

)

TOTAL FUNDS

1,106

(14,097

)

(12,991

)

Comparatives for movement in funds

Net

movement

At

At 1/7/23

in funds

30/6/24

£

£

£

Unrestricted funds

General fund

1,179

1,351

2,530

Restricted funds

The Big Lottery Fund - Awards for All

5,000

11,517

16,517

TOTAL FUNDS

6,179

12,868

19,047

Comparative net movement in funds, included in the above are as follows:

Incoming

Resources

Movement

resources

expended

in funds

£

£

£

Unrestricted funds

General fund

2,747

(1,396

)

1,351

Restricted funds

The Big Lottery Fund - Awards for All

20,000

(8,483

)

11,517

TOTAL FUNDS

22,747

(9,879

)

12,868

A current year 12 months and prior year 12 months combined position is as follows:

Net

Transfers

movement

between

At

At 1/7/23

in funds

funds

30/6/25

£

£

£

£

Unrestricted funds

General fund

1,179

(10,681

)

10,502

1,000

Restricted funds

The Big Lottery Fund - Awards for All

5,000

10,558

(10,502

)

5,056

TOTAL FUNDS

6,179

(123

)

-

6,056

A current year 12 months and prior year 12 months combined net movement in funds, included in the above are as follows:

Incoming

Resources

Movement

resources

expended

in funds

£

£

£

Unrestricted funds

General fund

3,853

(14,534

)

(10,681

)

Restricted funds

The Big Lottery Fund - Awards for All

20,000

(9,442

)

10,558

TOTAL FUNDS

23,853

(23,976

)

(123

)

10.	RELATED PARTY DISCLOSURES

There were no related party transactions for the year ended 30 June 2025.