The Nerve of My Multiple Sclerosis CIC supports and advocates for Black people living with neurological autoimmune conditions, including Multiple Sclerosis, NMOSD and MOGAD, with a particular focus on Black women and Black girls. During the financial year, the organisation delivered community-based support activities in the United Kingdom. These included in-person events designed to provide safe, culturally relevant spaces where individuals could access information, share lived experiences, and build peer support networks. As demand increased, the organisation extended the duration of its events to improve accessibility for attendees travelling from different parts of the UK. The organisation also expanded its reach beyond the UK through its affiliated branches in Ghana and Nigeria. These branches supported community engagement and awareness activities, helping to address gaps in knowledge, stigma, and access to information about neurological conditions in Black communities. In addition, the organisation carried out community engagement and survey work to better understand the experiences of Black individuals living with these conditions. This work identified ongoing challenges, including delays in diagnosis, lack of culturally appropriate care, and underrepresentation in research. As a result, the organisation began developing its research and advocacy work, including building partnerships and exploring initiatives to improve representation and outcomes for Black communities affected by neurological conditions. Overall, the company’s activities during the financial year have contributed to increased awareness, strengthened peer support, and improved community understanding of neurological autoimmune conditions within the populations it serves.

The company regularly consults with its key stakeholders, including patients, community members, healthcare professionals, and partner organisations. Consultation takes place through community events, direct engagement, and surveys designed to understand the experiences and needs of Black people living with neurological autoimmune conditions such as Multiple Sclerosis, NMOSD and MOGAD. Feedback from these consultations has directly informed the company’s activities. For example, increased demand for accessible and inclusive support led to the extension of community event formats to accommodate attendees travelling from different locations. Engagement with stakeholders also highlighted the need for greater awareness, culturally relevant information, and improved representation in research. In response, the company has expanded its activities to include international community engagement through its branches in Ghana and Nigeria, as well as developing its research and advocacy work to address identified gaps in care, awareness, and representation. The company will continue to use stakeholder feedback to shape its services and ensure that its activities remain responsive to the needs of the communities it serves.

No remuneration was received

No transfer of assets other than for full consideration