Hoarding Disorders UK (East) CIC is a
not-for-profit Community Interest Company, affiliated with and aligned to the
ethos and core objectives of Hoarding Disorders UK CIC. We provide expert
advice, training and consultancy- via phone and online consultations, listening
spaces, workshops and peer support groups - for people affected by the full
range of hoarding behaviours, from chronic disorganisation to extreme clutter,
as well as for the families, friends and professionals connected to them.
During the financial year, our activities continued to focus on advice,
training, partnership work and peer support across the Eastern Region, and
specifically Lincolnshire and Cambridgeshire.
Partnerships and Research
We worked closely with Anglia Ruskin University as part of the Hoarding and Possessions Collective, contributing to a research project exploring children's experiences of growing up in full and hoarded homes - work that is helping to build the evidence base for trauma-informed, child-centred practice in this area. We also provided ongoing input to the UK Hoarding Steering Group, helping to shape national thinking on hoarding support. Locally, we developed a partnership with MindSpace Stamford, where we host a monthly face-to-face hoarding peer support group, attendance has grown steadily over the year, and the group now supports individuals with a wide range of needs and personal circumstances.
We have supported local partners such as the Evergreen Care Trust, to provide decluttering advice and guidance to the local community, and secured grant funding from the Lincolnshire Integrated Care Board (ICB) to deliver and evaluate a group-based hoarding support programme (Buried In Treasures). This included capturing service-user stories through a "living library" approach. We led on a pro bono project application with Costello Medical, supported by Anglia Ruskin University colleagues, aimed at developing a robust framework for capturing incidence rates of hoarding difficulties, as well as cost analysis. This was successful and is now progressing at speed. We have also delivered pro bono guest lectures at the University of Lincoln.
Throughout the year we provided advice and guidance to professionals across Lincolnshire and Cambridgeshire on individual cases, best practice, and how to secure trauma-informed support for people experiencing hoarding difficulties. We worked directly with Cambridgeshire Fire Rescue on local case input and joint home visits, and with Lincolnshire Fire Rescue, who have contributed to our monthly face-to-face support group. We provided support to housing associations, contributed to local infrastructure work including input into the local Hoarding Forums and protocols, and engaged with Community Connector and Social Prescriber networks. We also delivered a significant number of 1 to 1 support calls and email advice sessions to individuals seeking help directly.
We delivered training, talks and webinars to a range of audiences, including Dora Brown, a Suffolk-based charity supporting families who are struggling to manage their home environments, as well as local Health and Wellbeing Networks in Bourne and Stamford, Social Prescriber and Community Connector networks, and a session for Care Knowledge on hoarding behaviours and children. We took an active role in Hoarding Awareness Week 2025, raising awareness with a particular focus on executive dysfunction. We contributed pro bono input to the development of a bespoke e-learning module, and delivered CPD-style training to a range of professional groups, including staff in the NHS, housing, and social care sectors.
We developed new guidance materials for families and friends of people affected by hoarding, to help those closest to someone struggling to offer more informed and compassionate support.
We ran a number of regular support spaces during the year, including in-person monthly sessions at MindSpace, a 16-week BIT (Buried in Treasures) programme, a new in-person UnBit monthly support group launched in October 2025, a separate face-to-face group focused on managing paperwork, an online monthly group for family and friends, and a quarterly forum for hoarding support group and programme facilitators to share practice and peer support.
Our work was featured in local and national media during the year, including a local radio interview with Rob Persani, coverage in the Stamford and Rutland Mercury and the Daily Mail, blog contributions to specialist networks, and an appearance on the Lincolnshire Personalised Care- "It's all About People" podcast, helping to raise public awareness of hoarding, executive dysfunction, and the support available.
To ensure our own practice remains current and safe, staff undertook a range of CPD during the year, including Stop Suicide training, Mental Health First Aid, a Motivational Interviewing refresher, and a Safeguarding Adults refresher.
Taken together, these activities have widened access
to trauma-informed, non-judgemental support for people affected by hoarding and
clutter, strengthened professional and multi-agency understanding of hoarding
as a complex, often trauma- and neurodivergence-linked issue, and helped reduce
stigma through public-facing awareness work, consistent with the company's
founding objective of benefiting people with hoarding disorder, and those
affected by hoarding behaviours, extreme clutter and chronic disorganization,
across the Eastern area
Our stakeholders are broad and include
Training delegates from a wide range of disciplines, including Local Authority teams (Social Care, Environmental Health, Family Support), NHS staff (Occupational Therapists, Therapeutic Leads), Social Prescribers, Fire Rescue Services, community services and other not-for-profit organisations, Housing Associations, Public Health, and independent clutter and hoarding practitioners.
People with hoarding difficulties, their loved ones, and those involved in providing support, to whom we provide advice and guidance.
Support group participants- people with hoarding difficulties, their loved ones, and other group and programme facilitators.
Colleagues and academic researchers specialising in direct support and guidance across the spectrum of hoarding behaviours.
Training delegates
We encourage honest and reflective feedback from delegates following every training session, and respond to this individually. This allows us to reflect continuously on programme content and inclusive facilitation approaches, and to iterate and improve. It has also led to the development of further bespoke training options in developing practice areas, always informed by the latest evidence-informed practice and research. This year we invested significant time and energy in developing new e-learning products, allowing us to continue to raise awareness, educate and inform while responding to the increasing challenge of limited training budgets among our stakeholders.
Support groups
We continue to focus on facilitating both face-to-face and online groups, encouraging participants to make decisions and shape the support they feel they would most benefit from. This is a continuous process from month to month, involving ongoing feedback and adaptation. By listening to the voices of those we seek to support, we launched a new online family and friends space during this reporting period, designed specifically for the seldom heard and seen loved ones who are themselves deeply impacted by hoarding.
Enquiries by email and telephone
We arranged for clients to provide feedback on all enquiries, and provided the necessary support and signposting. We know that the guidance we offer — and sometimes simply the option of having a space to talk through their circumstances — has been a significant benefit and relief to many. This includes the increasing number of families reaching out to us about signs of potential hoarding difficulties they believe they are seeing in their own children.
Community-based consultation with loved ones
We have worked closely with Anglia
Ruskin University to complete community-based consultations with loved ones,
exploring what effective support for them would look like. This included a
number of online focus group sessions and a consensus exercise. The result is a
specific resource for loved ones, which we intend to launch in the near future
as part of a growing repository of resources.
Support groups
We launched our UnBuried In Treasures (UnBit) group in October 2025, a further in-person monthly support space, launched in direct response to feedback from the group who completed the ICB funded research programme, who told us they wanted to continue meeting and stay connected, carrying on their journeys together. In addition, we launched a separate face-to-face support space focused on providing gentle support around managing paperwork- in itself a significant issue in the lives of many people affected by hoarding difficulties and chronic disorganisation. This was launched as a direct result of discussions in the monthly face-to-face group, where it emerged as a key theme time and time again.
Community-based consultation with loved onesThere was no interest paid at a performance-related rate.